my stumbles through life with ms
Heat intolerance has become a big deal in my household. The temps and humidity sky rocketed around here last weekend – the thermometer may have said 92, but the humidity said it was 110 and impossible to breathe. Obviously, the moment I got outside, I hit a wall of heat…
It was a landslide vote on Instagram this week -mental health was on e v e r y o n e ‘ s minds. Finding life hacks to deal with anxiety is also a big one on my mind these days. Anxiety and chronic illness come hand in hand, for…
When I first started researching MS, I didn’t even know if I was spelling Sclerosis correctly. After doing a bit of research, and finally sure of my spelling, I was thoroughly freaked. the. youknowwhat. out. I was suddenly introduced to terms like lesions, relapsing vs. progressive, and disease modifiers. I’d…
When I was first diagnosed, I struggled to find first hand introductory experiences with DMD’s. Just a month into my ms journey, I started on Plegridy. For a year, I was so sick. I mean, really sick. I couldn’t eat, I had the chills and shakes almost 2/7, and my…
This past week, I got the results of my most recent MRI. Among a couple other things which I address later, two new lesions made an appearance as well. Good news is they were subtle, and they’re not actively demyelinating. That basically means that while they’ve arrived in the last…
The past couple of weeks have flown by around here. We attended a class called Relationship Matters, put on by the National MS Society. Its focus is on serious relationships with ms as a third wheel, and we definitely fall into that category. The facilitators of the class were excellent,…
This month marks one full year that I’ve been on Plegridy. It’s an Interferon beta-1a used to treat Relapse Remitting Multiple Sclerosis. I inject it subcutaneously every 14 days. The last year has gone by quickly, but I’ll never forget it. When I first started Plegridy, I was just chomping…
Full disclosure – this is a revamped version of my very first post. I took it down for a while, for various reasons. I was unsure of the purpose, I was freshly diagnosed and confused, and mostly I was very self-conscious. I’ve edited a few parts with more clarity now…
Yesterday, I posted this on my Instagram. It’s a snip of a post I found on Pinterest. I suffered with weird symptoms for YEARS, and I also happen to suffer from two different autoimmune disorders, so this resonated with me. I have used this technique, years ago, with a provider…
The First Year of Marriage With MS Two days ago was my three year wedding anniversary – so why am I calling this The First Year? Because I got diagnosed with Relapse Remitting Multiple Sclerosis a little over a year ago, so I feel like this is our first full year…