If you follow me on Instagram, you know I’ve had a lot going on, but didn’t want this week to pass before I brought up a couple of things.
First up are the ignorant comments from Dr. Phil. He had the audacity to say 100 out of 100 care giving relationships fail. Really. I’ll only speak on this for a moment, as this is obviously ridiculous.
First of all, how would his relationship have lasted this long without that phenomenal wife of his, taking care of him and running the show this whole time? Thank you, next.
Secondly, this article from Hospital Princess breaks it down perfectly – what my husband and I do for each other is not care taking. It’s our normal.
Next up – Jamie Lynn Sigler and Selma Blair are phenomenal actresses, and there are a ton of more celebs with it as well, but Everclear holds a different type of place in my heart. Most exciting this past week for me is the announcement from Art Alexakis that he has MS.
I’m far from excited for him, because MS isn’t easy. I’m excited for myself. Everclear has been on my “comfort zone” playlist for years. I grew up dancing around to them in my living room. My dad couldn’t figure out why we suddenly had twice as many christmas presents one year, until my mom played him the song, “I Will Buy You A New life.” She swore we’d never have the joy of a welfare christmas.
Seeing another childhood hero “grow up” to be just like me is beyond comforting. Hearing him talk about the accusations of being a drunk because of the unsteadiness, the relief of knowing what all of it meant…it resonated with me more than a lot of stories I’ve heard. I’m not sure why.
Some people are a little upset over his comments regarding his neurologists claims about his progression. Specifically, he said ,”My neurologist says as long as I stay on the medication, I should live into my 80’s without progression. We shall see.”
Personally, that doesn’t bother me. Some say he’s in denial, or his neuro is. Some say this is the only way to look at it. Otherwise, you’ll waste your life waiting for progression and disability that may never come. All I’ll say, is that my neurologist has never told me anything close to that.
MS diagnosis and disease progression is very difficult to predict for anyone. He did basically say that I must live my life like I don’t have MS, but take it into account every step of the way. May not make much sense to you, but it’s how I live now and life is kind of grand.
In other news – Last Friday, I had the pleasure of attending Comedy for a Cause, a show benefiting and raising awareness for MS. Two of the comedians performing also have MS, and their jokes really rung an all too familiar bell for me. To the joking about our mood swings, to our bladder and balance issues, they brought our issues to life in a hilarious yet shockingly honest way.
And this Friday, I had the pleasure of visiting my fave local ER for a mini exacerbation – almost a year to the day I went in and got my diagnosis. MUCH more on that tomorrow, but I’m happy to report I’m home recovering. More importantly, my impromptu date with Ms. Solu-Medrol didn’t put a total damper on my weekend!
All of these things – Dr Phil showing his ass again, Everclear, comedy, going home – are the wrapping paper holding my week together, and my photo shoot this weekend was the perfect bow to adorn the top.
The photo shoot went absolutely p e r f e c t l y. I’m working on sorting through all of the shots, but lets just say my sister slayed these photos. I’m adding a couple sneak peaks, but check in tomorrow for more and more importantly, my Rebirthday celebration!
Make sure you check back tomorrow for more pics (including all my otufit details) and my Rebirthday post – it’s been a year in the making, and I’m so ready to get Stumble Pup’s message to more people!