How has it already been five years? I remember half walking, half dragging the numb side of my body into the hospital in 2018. The day before my husband’s 30th birthday, incidentally. After a month of dealing with steadily worsening numbness, fatigue, and pain, amongst many other troubling symptoms. I knew what was going on,… Continue reading 5 Years with Multiple Sclerosis
Well hello there…long time, no talk….or type? Not sure how to phrase that, but you get the gist, I’m sure. I’ve taken a long break from this blog, for various reasons, most of which are mundane and not worth mentioning. Some, however, took my full attention, and for good reason. When I last left off… Continue reading Welcome Back
Another year has come and gone – but this one looks a lot different than last, does it not? This post is a little late, as this anniversary came + went last month. Of course, more time just gives us more perspective. (that’s my excuse and I’m sticking with it.) Like I expect most who… Continue reading 2 Years with MS & 11 Months on Rebif – A Quick Update
Like a lot of the rest of the world right now, I’m practicing social distancing. Being stuck in the house is nothing new for me, or a lot of the chronic illness community. Feeling well and isolating is new for me, though. As such, I’m finding new things to keep me occupied, and decided one… Continue reading Creating a Medical Binder
As I’m a little yeah I won’t pretend, I’m completely obsessed with my pets – I thought I’d spruce up another post from the past. Life with fur babies when you’re disabled is half hot mess and half unconditional love. Everyone who knows me knows I’m in love with my little zoo, and are definitely… Continue reading Life As A Disabled Fur Baby Mama
“He who has a why to live can bear almost any how”. Friedrich Nietzsche Funnily enough, I named this post, “Finding My Why” loooong before I ever read that quote in Viktor Frankl‘s book Man’s Search For Meaning, but the book seriously brought this post back to life. I was kind of struggling with some of… Continue reading Finding My Why
This past week, I got the results of my most recent MRI. Among a couple other things which I address later, two new lesions made an appearance as well. Good news is they were subtle, and they’re not actively demyelinating. That basically means that while they’ve arrived in the last year, there isn’t any activity… Continue reading One Year MRI
This month marks one full year that I’ve been on Plegridy. It’s an Interferon beta-1a used to treat Relapse Remitting Multiple Sclerosis. I inject it subcutaneously every 14 days. The last year has gone by quickly, but I’ll never forget it. When I first started Plegridy, I was just chomping at the bit to get… Continue reading One Year on Plegridy
This week did not get off to a pleasant start. Without going into too much detail, let’s just say I was the conductor of the hot mess express and my best friend is the craziest passenger of all. (this week) Every time I get stressed out, I get sick. This weekend was no exception. Went… Continue reading Almost There
I’ve tried writing this a couple times, but admitting when I’m not living up to my own standards is hard. Right now I’m pondering the decision I’ve made to give up the ccma program I’ve been invested in since February. To be honest, the first couple of weeks should have been a dead giveaway that… Continue reading Giving In
