my stumbles through life with ms
How has it already been five years? I remember half walking, half dragging the numb side of my body into the hospital in 2018. The day before my husband’s 30th birthday, incidentally. After a month of dealing with steadily worsening numbness, fatigue, and pain, amongst many other troubling symptoms. I…
Another year has come and gone – but this one looks a lot different than last, does it not? This post is a little late, as this anniversary came + went last month. Of course, more time just gives us more perspective. (that’s my excuse and I’m sticking with it.)…
Like a lot of the rest of the world right now, I’m practicing social distancing. Being stuck in the house is nothing new for me, or a lot of the chronic illness community. Feeling well and isolating is new for me, though. As such, I’m finding new things to keep…
As I’m a little yeah I won’t pretend, I’m completely obsessed with my pets – I thought I’d spruce up another post from the past. Life with fur babies when you’re disabled is half hot mess and half unconditional love. Everyone who knows me knows I’m in love with my…
“He who has a why to live can bear almost any how”. Friedrich Nietzsche Funnily enough, I named this post, “Finding My Why” loooong before I ever read that quote in Viktor Frankl‘s book Man’s Search For Meaning, but the book seriously brought this post back to life. I was kind…
This past week, I got the results of my most recent MRI. Among a couple other things which I address later, two new lesions made an appearance as well. Good news is they were subtle, and they’re not actively demyelinating. That basically means that while they’ve arrived in the last…
This month marks one full year that I’ve been on Plegridy. It’s an Interferon beta-1a used to treat Relapse Remitting Multiple Sclerosis. I inject it subcutaneously every 14 days. The last year has gone by quickly, but I’ll never forget it. When I first started Plegridy, I was just chomping…
This week did not get off to a pleasant start. Without going into too much detail, let’s just say I was the conductor of the hot mess express and my best friend is the craziest passenger of all. (this week) Every time I get stressed out, I get sick. This…
I’ve tried writing this a couple times, but admitting when I’m not living up to my own standards is hard. Right now I’m pondering the decision I’ve made to give up the ccma program I’ve been invested in since February. To be honest, the first couple of weeks should have…
This Friday is no longer brought to you by a flare! I’m feeling so much better. I woke up yesterday morning without that usual ache, the weather pattern around here is finally calming down, and I’m 99% sure I’m officially on the mend. After last weeks er visit, I’m grateful…