Heat intolerance has become a big deal in my household. The temps and humidity sky rocketed around here last weekend – the thermometer may have said 92, but the humidity said it was 110 and impossible to breathe. Obviously, the moment I got outside, I hit a wall of heat and was miserable. MS and… Continue reading 6 Tips to Keep Cool This Summer
It was a landslide vote on Instagram this week -mental health was on e v e r y o n e ‘ s minds. Finding life hacks to deal with anxiety is also a big one on my mind these days. Anxiety and chronic illness come hand in hand, for a variety of reasons. Today,… Continue reading Life Hacks for Dealing With Anxiety
When I first started researching MS, I didn’t even know if I was spelling Sclerosis correctly. After doing a bit of research, and finally sure of my spelling, I was thoroughly freaked. the. youknowwhat. out. I was suddenly introduced to terms like lesions, relapsing vs. progressive, and disease modifiers. I’d never really considered autoimmune diseases… Continue reading What Is MS?
When I was first diagnosed, I struggled to find first hand introductory experiences with DMD’s. Just a month into my ms journey, I started on Plegridy. For a year, I was so sick. I mean, really sick. I couldn’t eat, I had the chills and shakes almost 2/7, and my skin was the perfect grey-green… Continue reading One Week on Rebif
This past week, I got the results of my most recent MRI. Among a couple other things which I address later, two new lesions made an appearance as well. Good news is they were subtle, and they’re not actively demyelinating. That basically means that while they’ve arrived in the last year, there isn’t any activity… Continue reading One Year MRI
The past couple of weeks have flown by around here. We attended a class called Relationship Matters, put on by the National MS Society. Its focus is on serious relationships with ms as a third wheel, and we definitely fall into that category. The facilitators of the class were excellent, and I can really say… Continue reading Feelings Check In
This month marks one full year that I’ve been on Plegridy. It’s an Interferon beta-1a used to treat Relapse Remitting Multiple Sclerosis. I inject it subcutaneously every 14 days. The last year has gone by quickly, but I’ll never forget it. When I first started Plegridy, I was just chomping at the bit to get… Continue reading One Year on Plegridy
Full disclosure – this is a revamped version of my very first post. I took it down for a while, for various reasons. I was unsure of the purpose, I was freshly diagnosed and confused, and mostly I was very self-conscious. I’ve edited a few parts with more clarity now that I have another year… Continue reading Diagnosis Time – Revisited
Yesterday, I posted this on my Instagram. It’s a snip of a post I found on Pinterest. I suffered with weird symptoms for YEARS, and I also happen to suffer from two different autoimmune disorders, so this resonated with me. I have used this technique, years ago, with a provider I no longer see. (thank… Continue reading When Doctors Ignore Your Symptoms
The First Year of Marriage With MS Two days ago was my three year wedding anniversary – so why am I calling this The First Year? Because I got diagnosed with Relapse Remitting Multiple Sclerosis a little over a year ago, so I feel like this is our first full year facing it together. I’ve had… Continue reading MS + Marriage
